Diagnoses and Stigmatization in Mental Health
January 25, 2017 § 2 Comments
Today is Bell Let’s Talk Day in Canada. For every Tweet and Instagram post with the hashtag, #BellLetsTalk Bell (a major telecommunications corporation in Canada) will donate $0.05 to to Canadian mental health programs. For every txt and long distance call made on Bell’s cell and land line networks, it will donate $0.05. And for every view of a video about the initiative on Bell’s Facebook page, and every use of the Bell Let’s Talk geofilter on SnapChat, Bell will donate $0.05. See the theme here?
We can debate the fact that this is a corporate-sponsored thing. Personally, I don’t care. I am more interested in the donations to mental health programs and ending the stigma about mental health. I find it shocking and depressing that in 2017, there still exists a stigma surrounding mental health.
As I noted in a previous post, I am reading Bessel van der Kolk’s The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma for a new research project on childhood, memory, and trauma. Van der Kolk is a psychiatrist and, it would appear, a pretty good one. One thing that has really captured my attention in reading this book is his argument about the power of diagnosis. In particular, he is concerned with Post-Traumatic Stress Disorder (PTSD), which arose out of his work with Vietnam veterans at the VA in Boston in the late 1970s. Since then, he has worked with probably thousands of children and adults suffering from PTSD and other ramifications of trauma.
I have long been sceptical of diagnoses in mental health, as they can also lead to a stigmatization of the individual in question. This is certainly an issue, and van der Kolk notes it. But he also argues that diagnosis is very important because it allows for a systematic plan to deal with mental health issues. It allows practitioners and patient/clients to draw on a great deal of expertise from researchers, clinicians, and patients/clients and a variety of treatment models that have been theorized and tested. And, he also notes, there’s the question of research and funding. For example, he notes, between 2007 and 2010, the US Department of Defence spent over $2.7 billion USD on treatment and research of PTSD in combat veterans.
In other words, there is something very valuable in the diagnosis of mental health problems. I still have serious problems with the stigmatization of diagnoses. And I still have a serious problem with the ‘disorder’ terminology used in the Diagnostic and Statistical Manual of Mental Disorders (DSM) of the American Psychiatry Association (APA). The term ‘disorder’ is a dangerous one in mental health precisely because of the stigmatization that comes with it.
Van der Kolk, to be fair, is aware of this and is also leery of what he dismisses as pseudo-scientific diagnoses. In fact, he goes on the attack of DSM-V, which was published in 2013. He recalls how before the likes of Louis Pasteur and Robert Koch, doctors were limited to treating physical symptoms, that which could be seen. Koch and Pasteur, however, pointed out that bacteria, unseen by the naked eye, caused many diseases. Thus, physicians changed their tactics to treating underlying causes, rather than the symptoms of illness. The problem with DSM-V, he argues is that with over 300 diagnoses in 945 pages, it offers ‘a veritable smorgasbord of possible labels for the problems associated with’ severe early-life trauma. He dismisses many of these labels, such as Oppositional Defiant Disorder, Intermittent Explore Disorder, and Disruptive Mood Regulation Disorder, as ‘pseudo-scientific.’
Fundamentally, he argues that the problem with all of these labels is that they are symptoms, not the actual problem.
I have bipolar disorder and have been fortunate to respond well to medication, but I never had adequate psychiatric support. As a result I scaled back medication with my doctor’s support and, when a serious and prolonged period of stress rocked my workplace, I became manic and had to leave my work and a career I loved. Working in the field of disability and mental health the tolerance for mental illness is shockingly low. Nonetheless, like many bipolar individuals like myself, I learned the hard way the value of staying on my medication. So imagine my dismay at the following opinion piece that ran on CBC on The National last night. You might be interested:
Oh dear, that is dismaying indeed. I can’t watch the full video, due to geo-blockers, and I’m doubly dismayed to learn that the field of disability and mental health has a low tolerance for mental illness. But. I appreciate you sharing that. I have battled depression most of my adult life, not the same thing, but that’s where I come from on this debate. I don’t really have an opinion on what I report on here, from van der Kolk and the importance of diagnostics, I don’t pretend to know enough about the topic, but I appreciated his argument.